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Genetic Research and Biobanks

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posted on 2023-05-22, 12:38 authored by Donald ChalmersDonald Chalmers
Human biobanks, and genetic research databases, as referred to by the Organisation for Economic Co-operation and Development (OECD), are essential tools for modern biomedical research. Biobanks may consist in collections created in clinical diagnosis (such as pathology tissue samples in hospitals) or collections created for large-scale longitudinal research (such as the UK Biobank). Human tissue collections are regulated by a patchwork of national laws. However, there is an increasing international uniformity in national privacy laws based on 1980s OECD standards. There are similar uniform standards developing in national research ethics guidelines. As biobanks develop collaborations and linkages, international harmonisation of legislation and human research regulation will be required across jurisdictions. It is essential that international public trust is maintained in biobanking research.

History

Publication title

Methods in Biobanking

Editors

J Dillner

Pagination

1-37

ISBN

978-1-58829-995-6

Department/School

Faculty of Law

Publisher

Springer

Place of publication

New York

Extent

25

Rights statement

Copyright 2011 Springer Science+Business Media, LLC

Repository Status

  • Restricted

Socio-economic Objectives

Justice and the law not elsewhere classified

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