Personal health information, privacy and surveillance: Do we need a critical voice?
chapter
posted on 2023-05-22, 14:33authored byWhetton, SG
This paper argues that many expanding secondary uses of personal health information are moving beyond legitimate monitoring processes, to become surveillance practices used for purposes of controlling individuals and populations. The paper focuses on the academic discipline of health informatics as a key claim-making site for influencing understandings about uses of personal health information. Using a Foucauldian influenced analysis, it discusses the way discourses shape our attitude to expanding uses of personal health information. It argues that aspirational goals of the discipline discourage critical analyses, creating the potential for the health informatics community to support expanding use of personal information for activities that may result in discrimination, disadvantage.
History
Publication title
MEDINFO 2013: Proceedings of the World Congress on Medical and Health Informatics
Volume
Parts 1 and 2
Editors
Christoph Ulrich Lehmann, Elske Ammenwerth, Christian Nøhr
Pagination
234-238
ISBN
978-1-61499-288-2
Department/School
School of Health Sciences
Publisher
IOS Press
Place of publication
Netherlands
Extent
186
Rights statement
Copyright IOS Press
Repository Status
Restricted
Socio-economic Objectives
Communication technologies, systems and services not elsewhere classified