University Of Tasmania
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Citizens’ access to their digital health data in eleven countries - a comparative study

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conference contribution
posted on 2023-05-23, 12:44 authored by Nohr, C, Ming WongMing Wong, Paul TurnerPaul Turner, Helen AlmondHelen Almond, Parv, L, Gilstad, H, Koch, S, Hardardottir, GA, Hypponen, H, Marcilly, R, Sheik, Z, Day, K, Kushniruk, A
Governments around the world are actively promoting citizens electronic access to their health data as one of a number of ways to respond to the challenges of health care delivery in the 21st century. While numerous approaches have been utilized it is evident from cross-country comparisons that there are different conceptualizations of: both the expected and desired roles for citizens in the management of their own health; the benefits that will be delivered by citizen access and how these benefits should be measured and benchmarked over-time. This paper presents comparative analyses of the methods by which citizens are provided with access to their own health data across 11 countries. The paper aims to stimulate debate on electronic citizen access to health data and the challenges of measuring benefit as well as reflection on capacity of different citizens to engage with e-health.


Publication title

Studies in Health Technology and Informatics 228: Proceedings of MIE2016 at HEC2016 - Exploring Complexity in Health: An Interdisciplinary Systems Approach




A Hoerbst, WO Hackl, N de Keizer, H-U Prokosch, M Hercigonja-Szekeres, S de Lusignan






School of Information and Communication Technology


IOS Press BV

Place of publication


Event title

Exploring Complexity in Health: An Interdisciplinary Systems Approach

Event Venue

Munich, Germany

Date of Event (Start Date)


Date of Event (End Date)


Rights statement

Copyright 2016 European Federation for Medical Informatics (EFMI) and IOS Press. Published under Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0)

Repository Status

  • Open

Socio-economic Objectives

Electronic information storage and retrieval services