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Citizens’ access to their digital health data in eleven countries - a comparative study
conference contribution
posted on 2023-05-23, 12:44 authored by Nohr, C, Ming WongMing Wong, Paul TurnerPaul Turner, Helen AlmondHelen Almond, Parv, L, Gilstad, H, Koch, S, Hardardottir, GA, Hypponen, H, Marcilly, R, Sheik, Z, Day, K, Kushniruk, AGovernments around the world are actively promoting citizens electronic access to their health data as one of a number of ways to respond to the challenges of health care delivery in the 21st century. While numerous approaches have been utilized it is evident from cross-country comparisons that there are different conceptualizations of: both the expected and desired roles for citizens in the management of their own health; the benefits that will be delivered by citizen access and how these benefits should be measured and benchmarked over-time. This paper presents comparative analyses of the methods by which citizens are provided with access to their own health data across 11 countries. The paper aims to stimulate debate on electronic citizen access to health data and the challenges of measuring benefit as well as reflection on capacity of different citizens to engage with e-health.
History
Publication title
Studies in Health Technology and Informatics 228: Proceedings of MIE2016 at HEC2016 - Exploring Complexity in Health: An Interdisciplinary Systems ApproachVolume
228Editors
A Hoerbst, WO Hackl, N de Keizer, H-U Prokosch, M Hercigonja-Szekeres, S de LusignanPagination
685-689ISBN
978-1-61499-677-4Department/School
School of Information and Communication TechnologyPublisher
IOS Press BVPlace of publication
NetherlandsEvent title
Exploring Complexity in Health: An Interdisciplinary Systems ApproachEvent Venue
Munich, GermanyDate of Event (Start Date)
2016-08-28Date of Event (End Date)
2016-09-02Rights statement
Copyright 2016 European Federation for Medical Informatics (EFMI) and IOS Press. Published under Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0)Repository Status
- Open