University Of Tasmania

File(s) under permanent embargo

Patients’ and carers’ experience of dementia and memory services: Early findings from the Australian Dementia Network (ADNeT) Registry

conference contribution
posted on 2023-05-24, 21:06 authored by Lin, X, Wallis, K, Brodaty, H, Kain, B, Cooper, S, Fitzpatrick, J, Jeon, YH, Naismith, S, Lambourne, S, Jane AltyJane Alty, Low, LF, Phillipson, L, McAloney, K, Ward, SA

• The Australian Dementia Network (ADNeT) Registry is a clinical quality registry (CQR) for people newly diagnosed with dementia and mild cognitive impairment (MCI). It collects and analyses data to monitor and drive quality improvements in clinical care and patient outcomes. The registry has been implemented within dementia and memory services across Australia since 2020.

• Including patient-reported measures is a priority for CQRs and enables data collection on outcomes that matter most to patients and their lived experience. Such data are important in understanding patients’ experience of clinical services and help to inform quality improvement initiatives.

• To our knowledge, the ADNeT Registry is the only dementia CQR that includes patient- and carer- reported measures.



Wicking Dementia Research Education Centre

Event title

Australian Dementia Research Forum 2022 (ADFR)

Event Venue


Date of Event (Start Date)


Date of Event (End Date)


Repository Status

  • Restricted

Socio-economic Objectives

Diagnosis of human diseases and conditions

Usage metrics

    University Of Tasmania