A lung cancer nurse specialist conceptual model of practice: a mixed methods study

PURPOSE: To identify and conceptualise the functions of the Lung Cancer Nurse Specialist (LCNS) role as reported by individuals with lung cancer, their carers, and LCNSs. Presented as a model of practice for the LCNS that strengthens evidence surrounding the LCNS role and optimises meeting the needs of people with lung cancer and their carers. STUDY DESIGN: A mixed methods approach using Group Concept Mapping (GCM) was employed. GCM is a participatory approach that includes sequential qualitative brainstorming and quantitative analysis using multidimensional scaling and hierarchical cluster analysis. Forty-six participants completed the brainstorming data collection, and 18 completed the sorting and rating data collection. Participants were people with lung cancer, their carers, and practicing LCNSs from Australia. RESULTS: A conceptual model of practice was developed identifying six key functions: person-centred care, dependable accessibility, individualised information provision, professionalism, specialist nurse, and coordinator. All participant groups (people with lung cancer, carers, LCNSs) rated person-centred care highly, with nuanced differences amongst the other functions. People with lung cancer and carers rated dependable accessibility and individualised information provision highly, while LCNSs prioritised professionalism. CONCLUSION: The conceptual model developed highlights the importance of person-centred care, individualised information provision, dependable accessibility, and professionalism. The importance of including carers in person-centred care is emphasised, and the need for specialist lung cancer nurse-specific training and education. This Model of Practice captures the work of LCNSs that aid in improving the outcomes for those impacted by lung cancer.<p></p>