University of Tasmania
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Australian Attitudes Towards Waivers of Consent Within the Context of Genomic Data Sharing

This research identifies the circumstances in which Human Research Ethics Committees (HRECs) are trusted by Australians to approve the use of genomic data - without express consent - and considers the impact of genomic data sharing settings, and respondent attributes, on public trust. Survey results (N = 3013) show some circumstances are more conducive to public trust than others, with waivers endorsed when future research is beneficial and when privacy is protected, but receiving less support in other instances. Still, results imply attitudes are influenced by more than these specific circumstances, with different data sharing settings, and participant attributes, affecting views. Ultimately, this research raises questions and concerns in relation to the criteria HRECs use when authorising waivers of consent in Australia.

Funding

Genomic Data Sharing: Issues in Law, Research Ethics and Society : Australian Research Council | DP180100269

History

Publication title

Journal of Empirical Research on Human Research Ethics

Volume

19

Issue

3

Pagination

113-123:11

eISSN

1556-2654

ISSN

1556-2646

Department/School

Law, Office of the Faculty of Law

Publisher

SAGE PUBLICATIONS INC

Publication status

  • Published

Rights statement

© The Author(s) 2024. Licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0).