University Of Tasmania

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Improving research about us, with us: a draft framework for inclusive autism research

journal contribution
posted on 2023-05-19, 11:16 authored by Chown, N, Robinson, J, Beardon, L, Jillian DowningJillian Downing, Hughes, L, Leatherland, J, Fox, K, Hickman, L, MacGregor, D
It is both epistemologically as well as ethically problematic if the autistic voice is not heard in relation to social scientific research seeking to further develop knowledge of autism. Ever since autism first emerged, it has remained medicalised and almost exclusively the preserve of non-autistic researchers. More recently, autistic individuals have begun to contribute to autism research. However, the vast majority of research in autism is still undertaken on autistic people, rather than with them, and is often not concerned with improving the dayto-day lives of people with autism. We discuss the concepts of participatory research and emancipatory research before presenting a draft framework for what we regard as truly inclusive research in autism. Our proposals are firmly based on ideas developed by the members of a university-based group of autistic adults (the Asperger’s Consultation Group) as well as the knowledge and experience of the other contributors.


Publication title

Disability and Society










Faculty of Education


Carfax Publishing

Place of publication

United Kingdom

Rights statement

Copyright 2017 Informa UK Limited, trading as Taylor & Francis Group

Repository Status

  • Restricted

Socio-economic Objectives

Expanding knowledge in psychology