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Investigating genetic discrimination in Australia: opportunities and challenges in the early stages

journal contribution
posted on 2023-05-16, 15:24 authored by Taylor, SD, Margaret OtlowskiMargaret Otlowski, Barlow-Stewart, K, Treloar, S, Stranger, MJA, Chenoweth, K
Genetic discrimination, defined as the differential treatment of individuals or their relatives on the basis of actual or presumed genetic differences, is an emerging issue of interest in academic, clinical, social and legal contexts. While its potential significance has been discussed widely, verified empirical data are scarce. Genetic discrimination is a complex phenomenon to describe and investigate, as evidenced by the recent Australian Law Reform Commission inquiry in Australia. The authors research project, which commenced in 2002, aims to document the multiple perspectives and experiences regarding genetic discrimination in Australia and inform future policy development and law reform. Data are being collected from consumers, employers, insurers and the legal system. Attempted verification of alleged accounts of genetic discrimination will be a novel feature of the research. This paper overviews the early stages of the research, including conceptual challenges and their methodological implications.

History

Publication title

New Genetics and Society

Volume

23

Pagination

225-239

ISSN

1463-6778

Department/School

Faculty of Law

Publisher

Carfax Publishing

Place of publication

UK

Repository Status

  • Restricted

Socio-economic Objectives

Justice and the law not elsewhere classified

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