Methodological Considerations in the Study of Genetic Discrimination
journal contribution
posted on 2023-05-16, 15:26 authored by Treloar, S, Taylor, SD, Margaret OtlowskiMargaret Otlowski, Barlow-Stewart, K, Stranger, MJA, Chenoweth, KThe potential significance and dimensions of genetic discrimination have been described extensively in published literature, but epidemiological and verified case data are limited. Obtaining unbiased data from individuals about discrimination which has been based on erroneous or unjustifiable assumptions about their genetic predispositions poses unique challenges. Through review and discussion of research literature, we identify methodological considerations for collecting valid epidemiological data on genetic discrimination from individuals in the community; in particular, we consider issues which relate to sampling, selection and response. We identify issues to promote sound study design, with particular attention to verification of genetic discrimination, and highlight the importance of clinical and genetic knowledge of complex genotype-phenotype relationships. Copyright © 2004 S. Karger AG, Basel.
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Publication title
Community GeneticsVolume
7Issue
4Pagination
161-168ISSN
1422-2795Department/School
School of Social SciencesPublisher
Kargar PublishersPlace of publication
SwitzerlandRepository Status
- Restricted
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