Patient and proxy reports regarding the experience of treatment decision-making in cancer care
Methods: Of 3,573 patients who received or were scheduled for chemotherapy, 3,108 self-reported and 465 had proxies reporting on their behalf about preferred and actual decision roles regarding this treatment. Preferred and actual decision roles were assessed using the Control Preferences Scale, and categorized as shared, patient-controlled, or doctor-controlled. Multivariable logistic regression models were used to assess the association between patient and proxy responses and whether preferences were met. The models adjusted for sociodemographic and clinical variables and patient/proxy-reported health status.
Results: Sixty-three percent of all respondents reported actual roles in decisions that matched their preferred roles (role attainment). Proxies and patients were similarly likely to report role attainment (65% vs 63%). In adjusted analyses, proxies were more likely report role attainment (OR=1.27, 95%CI=1.02-1.59), but this difference was smaller if health variables were excluded from the model (OR=1.14, 95%CI=0.92-1.41).
Conclusion: Most patients' preferences for treatment participation were met. Surveys from proxies appear to yield small differences on the reports of attainment of preferred treatment decision-making roles in cancer care versus surveys from patients.
History
Publication title
Psycho-OncologyVolume
29Issue
11Pagination
1943-1950ISSN
1057-9249Department/School
Menzies Institute for Medical ResearchPublisher
John Wiley & Sons LtdPlace of publication
The Atrium, Southern Gate, Chichester, England, W Sussex, Po19 8SqRights statement
Copyright 2020 John Wiley & Sons Ltd. This is the peer reviewed version of the following article, which has been published in final form at http://dx.doi.org/10.1002/pon.5528. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.Repository Status
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