University of Tasmania
Browse

File(s) under permanent embargo

Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data

journal contribution
posted on 2023-05-20, 17:18 authored by Hudson, M, Garrison, NA, Sterling, R, Caron, NR, Fox, K, Yracheta, J, Anderson, J, Wilcox, P, Arbour, L, Brown, A, Taualii, M, Kukutai, T, Haring, R, Te Aika, B, Baynam, GS, Dearden, PK, Chagna, D, Malhi, RS, Garba, I, Tiffin, N, Bolnick, D, Stott, M, Rolleston, AK, Ballantyne, LL, Lovett, R, David-Chavez, D, Martinez, A, Sporle, A, Margaret WalterMargaret Walter, Reading, J, Carroll, SR
Addressing Indigenous rights and interests in genetic resources has become increasingly challenging in an open science environment that promotes unrestricted access to genomic data. Although Indigenous experiences with genetic research have been shaped by a series of negative interactions, there is increasing recognition that equitable benefits can only be realized through greater participation of Indigenous communities. Issues of trust, accountability and equity underpin Indigenous critiques of genetic research and the sharing of genomic data. This Perspectives article highlights identified issues for Indigenous communities around the sharing of genomic data and suggests principles and actions that genomic researchers can adopt to recognize community rights and interests in data.

History

Publication title

Nature Reviews Genetics

Volume

21

Issue

6

Pagination

377-384

ISSN

1471-0056

Department/School

School of Social Sciences

Publisher

Nature Publishing Group

Place of publication

United Kingdom

Rights statement

© Springer Nature Limited 2020

Repository Status

  • Restricted

Socio-economic Objectives

Aboriginal and Torres Strait Islander community services not elsewhere classified

Usage metrics

    University Of Tasmania

    Exports

    RefWorks
    BibTeX
    Ref. manager
    Endnote
    DataCite
    NLM
    DC