A significant number of children with a range of complex conditions and health care needs are being cared for by parents in the home environment. This mixed methods systematic review aimed to determine the amount of sleep obtained by these parents and the extent to which the child-related overnight health or care needs affected parental sleep experience and daily functioning. Summary statistics were not able to be determined due to the heterogeneity of included studies, but the common themes that emerged are that parents of children with complex needs experience sleep deprivation that can be both relentless and draining and affects the parents themselves and their relationships. The degree of sleep deprivation varies by diagnosis, but a key contributing factor is the need for parents to be vigilant at night. Of particular importance to health care professionals is the inadequate overnight support provided to parents of children with complex needs, potentially placing these parents at risk of poorer health outcomes associated with sleep deprivation and disturbance. This needs to be addressed to enable parents to remain well and continue to provide the care that their child and family require.
History
Publication title
Journal of Family Nursing
Volume
21
Pagination
86-118
ISSN
1074-8407
Department/School
School of Nursing
Publisher
Sage Publications, Inc.
Place of publication
United States
Rights statement
Copyright 2014 The Authors
Repository Status
Restricted
Socio-economic Objectives
Evaluation of health and support services not elsewhere classified