The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination
journal contribution
posted on 2023-05-21, 04:12authored byJoly, Y, Huerne, K, Arych, M, Bombard, Y, De Paor, A, Dove, ES, Granados Moreno, P, Ho, CWL, Ho, CH, Van Hoyweghen, I, Kim, H, Lebret, A, Minssen, T, Cathaoir, KO, Prince, AER, Nair, APS, Margaret OtlowskiMargaret Otlowski, Pepper, MS, Sladek, R, Song, L, Voigt, TH, Zawati, MH, Dalpe, G
Genetic discrimination (GD) is the differential or unfair profiling of an individual on the basis of genetic data. This article summarizes the actions of the Genetic Discrimination Observatory (GDO) in addressing GD and recent developments in GD since late 2020. It shows how GD can take many forms in today's rapidly evolving society.