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To share or not to share is the question

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journal contribution
posted on 2023-05-18, 04:06 authored by Donald ChalmersDonald Chalmers, Dianne NicolDianne Nicol, Margaret OtlowskiMargaret Otlowski
Data sharing is increasingly becoming an essential component of clinical practice and biomedical research. The debate has shifted from whether or not to exchange data to how best to achieve optimal sharing. This raises new ethical and legal challenges, particularly with regard to consent and privacy. This article discusses recent developments in the formulation of best practice guidelines for data sharing. Particular attention is focused on the Global Alliance for Genomics and Health (GA4GH) draft Framework of Conduct for Data Sharing.

History

Publication title

Applied and Translational Genomics

Issue

4

Pagination

116-119

ISSN

2212-0661

Department/School

Faculty of Law

Publisher

Elsevier BV

Place of publication

Netherlands

Rights statement

Copyright 2014 Elsevier Licenced under Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported (CC BY-NC-ND 3.0) http://creativecommons.org/licenses/by-nc-nd/3.0/

Repository Status

  • Open

Socio-economic Objectives

Justice and the law not elsewhere classified

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