95604_chalmers.pdf (171.46 kB)
To share or not to share is the question
journal contributionposted on 2023-05-18, 04:06 authored by Donald ChalmersDonald Chalmers, Dianne NicolDianne Nicol, Margaret OtlowskiMargaret Otlowski
Data sharing is increasingly becoming an essential component of clinical practice and biomedical research. The debate has shifted from whether or not to exchange data to how best to achieve optimal sharing. This raises new ethical and legal challenges, particularly with regard to consent and privacy. This article discusses recent developments in the formulation of best practice guidelines for data sharing. Particular attention is focused on the Global Alliance for Genomics and Health (GA4GH) draft Framework of Conduct for Data Sharing.
Publication titleApplied and Translational Genomics
Department/SchoolFaculty of Law
Place of publicationNetherlands
Rights statementCopyright 2014 Elsevier Licenced under Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported (CC BY-NC-ND 3.0) http://creativecommons.org/licenses/by-nc-nd/3.0/