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'What Do You Think about Genetic Medicine?' Facilitating Sociable Public Discourse on Developments in the New Genetics
journal contributionposted on 2023-05-16, 14:56 authored by Barns, I, Schibeci, R, Aidan DavisonAidan Davison, Shaw, R
An important aspect of any meaningful public discussion about developments in gene technology is the provision of opportunities for interested publics to engage in sociable public discourse with other lay people and with experts. This article reports on a series of peer group conversations conducted in late 1996 and early 1997 with sixteen community groups in Perth, Western Australia, interested in gene therapy technology. With the case of cystic fibrosis as a particular focus, and using background resource material as a stimulus for discussion, the participating groups explored a range of value issues arising from the new genetic medicine. This more discursive context enabled participants to express a number of background or life-world concerns about genetic medicine, concerns that are often obscured by the dominant biomedical and bioethical discourses.
Publication titleScience, Technology, & Human Values
Department/SchoolSchool of Geography, Planning and Spatial Sciences
Place of publicationUnited States