University of Tasmania
whole_McVillyKeithR1998_thesis.pdf (4.12 MB)

Quality of life : the evaluation services for people with intellectual disability

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posted on 2023-05-26, 17:20 authored by McVilly, KR
In this review issues and methodologies pertaining to the promotion and assessment of the quality of life (QOL) experienced by people with Intellectual Disability (ID) are evaluated in light of research findings for people without ID. QOL is discussed in terms of a multidimensional and dynamic construct used as an indicator of psychological and physiological wellbeing. Objective and subjective components of QOL are reviewed, together with social and psychological factors. Various approaches to the assessment of QOL, such as the examination of people's physical location and their opportunity to acquire and apply skills for independent living are considered, together with process-centered and outcome-centered approaches to evaluation. The influence of Social Role Valorization/Normalization and processes such as deinstitutionalisation and community integration are discussed. Difficulties, such as limited receptive and expressive communication skills, encountered when eliciting the perspective of people with II) are considered. So too, difficulties inherent in the use of proxy-based respondents are discussed. It is proposed that future research should address the question of proxy-subject concurrence, including the systematic evaluation of demographic and psychological factors that may affect proxy-subject agreement concerning QOL assessment.


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  • Unpublished

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Copyright 1997 the author - The University is continuing to endeavour to trace the copyright owner(s) and in the meantime this item has been reproduced here in good faith. We would be pleased to hear from the copyright owner(s). Pages 40 - 77 of this thesis appear to be the equivalent of a submitted manuscript published by Taylor and Francis as: McVilly, K. R., Burton-Smith, R. M., Davidson, J. A., 2000. Concurrence between subject and proxy ratings of quality of life for people with and without intellectual disabilities, Journal of intellectual and developmental disability, 25(1), 19-39

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